Chronic Fatigue Syndrome Activist
By Sue Jackson
It is easy to become a Chronic Fatigue Syndrome activist! Whether it is International CFS/ME Awareness Day or any day, there are some simple things you can do to help educate the world about CFS, even if you can't leave your house.
You can participate in the
CFIDS Association's Virtual Lobby Day. This helps to spread the word about CFS to your local media and your elected officials. You can finish all 3 of the actions listed in about 10 minutes (you can also choose to just do 1 or 2 of the actions). This really works! Last year, both our local town newspaper and our city newspaper published the letters I sent through the CAA's Action center. I also received responses from my Senators and Representative, as well as a thank you note from a local representative who has a family member with CFS. It works and it's easy - try it!
Tell your friends and family about CFS. You can post a small note about CFS on Facebook or other social networking site. During the first few years after I was diagnosed, I e-mailed my family and friends to tell them more about CFS and how they could help. Several of my friends thanked me and said they wanted to know more. Here are some sources of information you can provide to others:
You and your friends and family can also donate money to help fund badly-needed CFS research. I know the economy has people worried right now, but you could always do what we've done and just switch some of your charitable giving from other organizations to the CFIDS Association
or another organization that supports CFS research.
You can also donate to CFS research without spending any extra money by using a shopping donation site or links like:
You can even earn money for CFS research when you use a search engine:
I've made iSearchiGive my homepage so that all of my searches earn money for the CFIDS Association.
Sue Jackson is a freelance writer, specializing in topics related to family and travel. You can read more about her writing at
. She also has a blog called
Learning to Live with CFS
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